epilepsy

epilepsy

Mommy Guilt: When Special Needs Are Just Too Much

The guilt. The shame. The loneliness.

Mommy Guilt: When Special Needs Are Just Too Much

The guilt.

The shame.

The loneliness.

The exhaustion.

They are often the constant companions of mothers raising children with special needs.

I feel like a horrible mother because I can’t take my child’s behavior anymore,” writes Zenovia K. in the Children with ADHD/ADD community. Her 12-year-old daughter has both attention deficit hyperactivity and oppositional defiant disorders. It\'s a tough cognitive combination that sometimes causes her daughter to physically and verbally assault her.

“I feel so alone,” Zenovia posts.

Yet she isn’t.

At least not according to numbers reported by the Centers for Disease Control and Prevention.

  • 13 percent of American children have a developmental disability ranging from a mild speech or language impairment to a serious developmental or intellectual diagnosis such as cerebral palsy or autism.
  • 4.5 million school age children have ADHD
  • 1 in 110 children have an autism spectrum disorder
  • 10 percent of children have anxiety disorder

“The last few days I seem to feel like I’m failing as a mother,” writes Summer P. in the Mothers of Special Needs Children community.

Her three-year-old son has a global development delay, mild cerebral palsy, and a genetic disorder caused by a chromosome deletion. His vocabulary is limited. She’s having difficulty getting him to understand the concept of danger.

“I always felt like I was in control and dealing with everything the best I could, but in the last few days I’m feeling like I’m just failing,” Summer posts. “Major guilt and feelings of failure happening in our house.”

In just two short paragraphs, Summer used the word “failure” three times to describe her efforts as a mom.

While feelings of failure are real and valid emotions, a mom named Holly O. points out that they don’t say much about how well a parent is actually handling the special challenge of raising of a special needs child. As she puts it, “While it is easier said than done, throw that guilt and failure right out the window. You are a good, loving, caring mom of a very complex little boy.\"

“Yes, there are times when you feel you are failing them but you are not,” writes Brenda H.

“You are doing the best you can with a difficult child,” adds Jane S.

Hearing encouraging words from other mothers who are walking the same path can be exactly the help a discouraged mom needs most.

Case in point: Christi T. posted about her feeling of failure in the Autism/Asperger’s/PPD Awareness community not long after her son was first diagnosed. She didn\'t realize he was behind developmentally initially, and when the diagnosis finally came, people in her life questioned her skills as a mother, blaming her for her son’s diagnosis.

“When I tell them, they laugh and say, oh, he will grow out of it,” she writes. “They ask, how old are you, and when I tell them my age (I am soon to be 22), I get oh, it’s just because you are a young mom and don’t know what you are doing. It frustrates me so much and makes me feel like a complete failure.”

Christi changed her tune after a few fellow mothers commented on her thread.

“I guess I just kinda needed a pep talk,” she posted. “Thank you for all of the support, it really is comforting to know I am not the only mom out there that feels this way.”

The views expressed in this article are those of the author and do not necessarily represent the views of, and should not be attributed to, POPSUGAR.

News

Epileptic Boy Denied Right to Bring Seizure Dog to School?

Does everyone really have a right to an education?

Does everyone really have a right to an education? People in Virgina are questioning that since Andrew Stevens, 12, a boy who suffers from Lennox-Gastaut syndrome, a rare form of epilepsy, is having trouble returning to Fort Belvoir Elementary. The conditions of his reentry, after being home schooled for two years, are posing a problem. One report said:

The family raised $20,000 to get Alliya, a seizure detecting dog. But Andrew's school says that because he has a disability, he can't manage the dog if he has a seizure.

Using the Americans with Disabilities Act, the boy's mother, Nancy, is battling the system. Do you think the school has a legitimate concern?

myths

Epilepsy Myth

I just read this and knew I had to share it: it is a myth that a person having a seizure can swallow their tongue, therefore you should never put anything in their mouth.

I just read this and knew I had to share it: it is a myth that a person having a seizure can swallow their tongue, therefore you should never put anything in their mouth. If you put an object in someone's mouth who is having a seizure, they could bite it and the piece of stick or pencil could get lodged in their throat and block their ability to breath. Which is ultimately more dangerous than a seizure.

A recent survey conducted at University College London found that many myths surrounding epilepsy were prevalent in about 30 - 35 % of the population questioned, about 4,600 people.

Seizures are caused by sudden bursts of electrical activity in the brain, which interrupts normal communication between the brain and the body and epilepsy is diagnosed in people who have regularly recurring seizures. Experts recommend that if someone has a seizure, objects around them should be removed and their head needs to be cushioned if they are on the floor. Apart from that the seizure should be allowed to run its course. An ambulance should be called in the case of: first seizures, those lasting over five minutes, if the person is hurt or has several seizures.

I think it is important to shed light on old myths and share the facts - you never know when you might need them.